Every shirt sold supports research and families living with Tetrasomy 18p. Wear it with purpose.
Get Your Shirt →Last updated: March 8th, 2026
A wearable way to show your support. Every purchase directly funds research and advocacy for families affected by Chromosome 18 conditions.
Order NowFulfilled and shipped by Bonfire on demand. Production costs reflect Bonfire's base pricing. Proceeds go directly to the Chromosome 18 Registry & Research Society.
Eli is a joyful, resilient little boy whose life reminds everyone around him what perseverance and love really look like.
Eli was born with Tetrasomy 18p, a rare chromosomal condition that affects only a small number of individuals worldwide. Like many children with this diagnosis, Eli faces unique challenges that impact his development and daily life. But what truly defines Eli isn't his diagnosis — it's his spirit.
Eli is full of personality. He brings laughter, curiosity, and determination into every room he enters. His journey has included therapies, doctor visits, and milestones that sometimes take extra time and hard work to reach. Yet Eli continues to show incredible strength and determination every step of the way.
Behind Eli is a family who loves him fiercely and advocates for him daily. Every achievement — big or small — is celebrated, because each one represents hard work, patience, and progress.
On April 18th, Tetrasomy Awareness Day, we are raising awareness and support for individuals like Eli and families navigating life with rare chromosomal conditions. Increased awareness helps fund research, support services, and resources that improve the lives of those affected by Tetrasomy 18p.
Eli's story is one of courage, hope, and the power of community. By supporting this fundraiser, you're helping shine a light on a rare condition and supporting families who are walking this journey together.
Thank you for standing with Eli and the entire Chromosome 18 community.
Tetrasomy 18p is a rare chromosomal disorder where an individual has four copies of the short arm (p) of chromosome 18, rather than the typical two.
Only a few hundred cases have been documented worldwide, making it one of the rarest chromosomal conditions. Each case is unique.
Individuals may experience developmental delays, intellectual disabilities, speech differences, and various medical needs — but every child's experience differs.
Because Tetrasomy 18p is so rare, research funding is critical to improving diagnosis, care, and quality of life for affected individuals and families.
Every dollar raised through this fundraiser is donated directly to the organization dedicated to families like ours.
The only nonprofit in the world exclusively focused on chromosome 18 conditions. They fund research, connect families, and advocate for individuals with conditions like Tetrasomy 18p worldwide.
Learn more at chromosome18.org →Every dollar counts. If you'd like to donate directly to the Chromosome 18 Registry & Research Society, you can do so securely below.
⭐ Important: Dedicate your donation to Eli Berglund
When completing your donation, please add "In honor of Eli Berglund" in the dedication or tribute field so we can track the impact of our fundraiser.
You'll be taken to a secure Give Lively page to complete your donation.
Join us in fighting for Eli and for every child living with Chromosome 18 conditions. Thank you for your support.
Shop the FundraiserLegal Disclosures
This fundraiser is independently organized by Kyle & Shelby Berglund as private individuals in honor of their son, Eli Berglund. It is not operated by or on behalf of the Chromosome 18 Registry & Research Society. T-shirts are sold exclusively through Bonfire, a third-party fundraising platform. Bonfire processes all payments, fulfills orders, and remits proceeds directly to the Chromosome 18 Registry & Research Society, a registered 501(c)(3) nonprofit organization (EIN available upon request). At no point do campaign organizers collect, handle, or transfer shirt sale funds.
Tax Deductibility — T-Shirt Purchases: Purchases of fundraiser t-shirts are generally not tax-deductible, as you are receiving goods (a shirt) in exchange for your payment. The tax-deductible portion, if any, is limited to the amount paid above the fair market value of the shirt received.
Tax Deductibility — Direct Donations: Donations made directly through the Give Lively link on this page go to the Chromosome 18 Registry & Research Society, a 501(c)(3) organization, and may be tax-deductible to the extent permitted by law. Please consult your tax advisor for guidance specific to your situation.
Arizona has no state charitable solicitation registration requirement (repealed 2013). This disclosure is provided for transparency and does not constitute legal or tax advice. Questions? Contact us at shelbyrberglund@gmail.com.